What to Know About Taking Part in a Clinical Trial

Taking part in a clinical trial can be a great way to help improve treatment for your eye disease. Your participation can help both you and others who may benefit from the treatment if it is approved by the US Food and Drug Administration in the future. Here are a few things to consider about participating in a clinical trial:

Before you join the trial, leaders of the clinical trial will let you know what you need to do to participate. They can also let you know how you can leave the trial if you choose to do so. Providing information about the trial and letting you know about any potential treatment side effects is called informed consent.1

For more information about clinical trials, click here to access a variety of educational videos and information about medical research, as well as important questions to ask provided by the US Department of Health and Human Services (HHS).2 Sharing this information with your provider can help you identify appropriate trials for your retinal condition and support discussions on whether or not participation in a clinical trial is right for you.

References

  1. US Food and Drug Administration. Clinical trial diversity. https://www.fda.gov/consumers/minority-health-and-health-equity/clinical-trial-diversity
  2. HHS, Office for Human Research Protections. About research participation. https://www.hhs.gov/ohrp/education-and-outreach/about-research-participation/index.html

Scientific Council

Neil M. Bressler, MD

James P. Gills Professor of Ophthalmology
Professor of Ophthalmology, Johns Hopkins University School of Medicine
Wilmer Eye Institute, Johns Hopkins Medicine
Baltimore, MD

A. Paul Chous, MA, OD, FAAO

Specializing in Diabetes Eye Care & Education, Chous Eye Care Associates
Adjunct Professor of Optometry, Western University of Health Sciences
AOA Representative, National Diabetes Education Program
Tacoma, WA

Steven Ferrucci, OD, FAAO

Chief of Optometry, Sepulveda VA Medical Center
Professor, Southern California College of Optometry at Marshall B. Ketchum University
Sepulveda, CA

Julia A. Haller, MD

Ophthalmologist-in-Chief
Wills Eye Hospital
Philadelphia, PA

Allen C. Ho, MD, FACS

Director, Retina Research
Wills Eye Hospital
Professor and Chair of the Department of Ophthalmology
Thomas Jefferson University Hospitals
Philadelphia, PA

Charles C. Wykoff, MD, PhD

Director of Research, Retina Consultants of Houston
Associate Professor of Clinical Ophthalmology
Blanton Eye Institute & Houston Methodist Hospital
Houston, TX

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Patient & Caregiver Educational Resources

The RELIEF Patient Toolkit is a resource center for patients who have been diagnosed with or who are interested in learning about age-related macular degeneration (AMD). Choose from the options below to learn more.

This activity is provided by Med Learning Group. This activity is co-provided by Ultimate Medical Academy/Complete Conference Management (CCM). This activity is supported by an independent medical education grant from Regeneron Pharmaceuticals, Inc.

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