Patient Stories

Meet Lynn, who explains her decision to participate, as well as her overall experience of being part of a clinical trial for treatment of complications related to a retinal condition called retinal vein occlusion (RVO)

Meet Cherie, who explains her experience with anti-VEGF injections for AMD

Barriers to eye care1,2

  • Limited knowledge of AMD: Not all people with AMD are aware of the importance of dilated eye exams beginning at age 40, even if a person has no symptoms
  • Cost of care: Treatment can be expensive, and out-of-pocket costs to get to your appointment can add up. Your insurance company may have certain requirements for therapy. Ask your eye doctor what programs are available to reduce your cost
  • Difficulty buying and locating vitamins (AREDS or AREDS2): Ask your eye doctor what vitamin is right for you, take a picture of the bottle, or enroll in a subscription service that sends vitamins directly to your home
  • Fear of treatment: Speak with your doctor before your appointment if fear may prevent you from going to the appointment. Pain with eye treatment is mild for most people
  • Time: It may be necessary to take time off work or other responsibilities to attend regular visits to receive treatment, and the time devoted to going to the eye doctor, waiting for your appointment, the treatment, and recovery time can all be considerable
  • Transportation challenges: If you don’t drive, or your eye clinic is not close to your home, it may be challenging to get to the office
  • Comorbidities: Other health conditions can impact your eye condition, and conflicting health appointments can impact your ability to receive timely treatment

Talk to your doctor about things that make caring for your eyes a challenge. They may be able to offer support or recommend a treatment to better fit your life.

References

  1. Hall, LB. Barriers to eye care among patients with age-related macular degeneration in the Yale Eye Center. January 2014. Yale Medicine Thesis Digital Library. https://elischolar.library.yale.edu/ymtdl/1885/
  2. Almony A. Disease burden of neovascular age-related macular degeneration and diabetic macular edema. Am J Manag Care. 2023;29(suppl 6):S75-S80.

All URLs accessed October 1, 2024.

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Directory

Scientific Council

Neil M. Bressler, MD

James P. Gills Professor of Ophthalmology
Professor of Ophthalmology, Johns Hopkins University School of Medicine
Wilmer Eye Institute, Johns Hopkins Medicine
Baltimore, MD

A. Paul Chous, MA, OD, FAAO

Specializing in Diabetes Eye Care & Education, Chous Eye Care Associates
Adjunct Professor of Optometry, Western University of Health Sciences
AOA Representative, National Diabetes Education Program
Tacoma, WA

Steven Ferrucci, OD, FAAO

Chief of Optometry, Sepulveda VA Medical Center
Professor, Southern California College of Optometry at Marshall B. Ketchum University
Sepulveda, CA

Julia A. Haller, MD

Ophthalmologist-in-Chief
Wills Eye Hospital
Philadelphia, PA

Allen C. Ho, MD, FACS

Director, Retina Research
Wills Eye Hospital
Professor and Chair of the Department of Ophthalmology
Thomas Jefferson University Hospitals
Philadelphia, PA

Charles C. Wykoff, MD, PhD

Director of Research, Retina Consultants of Houston
Associate Professor of Clinical Ophthalmology
Blanton Eye Institute & Houston Methodist Hospital
Houston, TX

Patient & Caregiver Educational Resources

The RELIEF Patient Toolkit is a resource center for patients who have been diagnosed with or who are interested in learning about age-related macular degeneration (AMD). Choose from the options below to learn more.

This activity is provided by Med Learning Group.
This activity is supported by an independent medical education grant from Regeneron Pharmaceuticals, Inc.

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